Ataxia

  Members,  Dr. Christopher Gomez and Hannah Casey have worked hard to develop and get Institutional Review Board approval to create the below electronic SCA6 and SCA27B Survey Study.  This survey is intended to better understand lifestyle factors that might influence the timing and severity of symptom development and progression with a hope to better inform researchers and future generations about any potential impactful lifestyle factors. I appreciate that many of you participated in the past with the paper questionnaire that was sent through the mail and led to a successful publication just this year that we've discussed at some of our meetings ( https://pubmed.ncbi.nlm.nih.gov/38217689/ ). This publication has led to more questions though and rather than create another paper questionnaire, I'm so happy that Dr. Gomez and Hannah successfully created a logistically simpler, more streamlined electronic questionnaire that 'uses branching logic' to make the questions mor