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Showing posts from September 18, 2024

Sept Zoom meeting - you’re invited !

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Dear Members, Please accept my apologies for putting the discordant times in the e-mail I sent yesterday.  Please join me by Zoom  on Sept. 27th ,  next week on Friday at 4 pm  US Eastern Standard Time (EST) for a meeting with Dr. Christopher Gomez for an update on what is happening with SCA6 research, to get questions answered, and also to discuss the SCA6 and SCA27B survey. The meeting will be recorded for those unable to attend. If you wish to participate in the study, you can access the electronic consent and survey with this link:  https://redcap.uchicago.edu/surveys/?s=KK7N44F43HMDNYY3 If you have any questions about the survey, please see attached information or contact Hannah Casey below who is leading this effort. Feedback I've received is that it takes 30 minutes to a couple hours to complete, but there is a 'save and exit' button for if you want to take a break. Best wishes, Terry   Hannah Casey  |  Senior Analyst, Clinical Research Department of Neurology The Un