New Opportunities
Dear Members, Happy Spring! I hope you all are doing well. I just wanted to provide a couple updates and share about a few opportunities. Dr. Gomez's laboratory is busy analyzing the SCA6 questionnaires that so many of you have participated in, thank you. His lab already has a couple publications just this year in PubMed: Longitudinal Changes in Patient- and Clinical-Reported Outcomes in Early Spinocerebellar Ataxia Types 1, 2, 3, and 6 from the IDEA Study Jan 2025: Describes how certain patient reported outcome measures can measure changes after 2 years, but that more sensitive measures of change are still needed to measure change over shorter lengths of time. https://pubmed.ncbi.nlm.nih.gov/39876568/ Reliability of remote video ratings of the scale for assessment and rating of ataxia March 2025: Describes how assessment of SARA ( Scale for Assessment and Rating of Ataxia) can be performed accurately by video. This is good news for those of you who want to get a SA...